The Hidden Impact of Waiting

Across the UK, children and young people referred for autism and ADHD assessments often face long waiting periods. While much attention is given to the diagnostic process itself, there is less focus on what happens during the wait.

For many young people, this period is far from neutral. Without structured support, difficulties can escalate. Anxiety may increase, emotional regulation becomes more challenging, and engagement with school and daily routines can deteriorate. Families are often left managing complex needs with limited guidance.

Research and clinical experience show that early intervention is key to improving long-term outcomes. However, current service models often prioritise diagnosis over pre-diagnostic support, leaving a significant gap.

Providing support during this waiting period is not about replacing diagnosis. It is about recognising that these young people already have needs that require attention. By offering early strategies, emotional support, and guidance to families, it is possible to reduce distress and prevent escalation.

Addressing this gap is an essential step toward building a more responsive and preventative mental health system.